首页
外语
计算机
考研
公务员
职业资格
财经
工程
司法
医学
专升本
自考
实用职业技能
登录
考研
The devil, as the old saying goes, is in the details. Or, in the case of the new Estonian law setting up a national genetic data
The devil, as the old saying goes, is in the details. Or, in the case of the new Estonian law setting up a national genetic data
admin
2015-02-12
71
问题
The devil, as the old saying goes, is in the details. Or, in the case of the new Estonian law setting up a national genetic data bank, there is reason for concern that the devil may get involved in the actual workings of that country’s Human Gene Research Act.
The authors of the 34-section act have made a serious effort to prevent misuse of the data and to protect gene donors’ rights and privacy. Participation in the project is strictly voluntary, on the basis of informed consent. It will be illegal to ask anyone if he or she is participating in the free program. People won’t be paid for providing a tissue sample, medical, and family history to the Estonian Gene Bank. That information is immediately given "a unique code consisting of at least 16 random characters." Genetic and medical data become and remain the property of the Estonian Gene Bank— except that individual donors have the right, "at any time," to request "destruction of the data which enables decoding." They can also have their sample materials destroyed if their identity has been unlawfully disclosed.
Donors are entitled to their own genetic data, at no charge, as are their designated physicians. No one else has lawful access to this information. Indeed, it is unlawful to ask—and the act contains specific paragraphs that forbid employers and insurance companies to gather such information, or to treat "people with different genetic risks" differently as employees or insurance clients. Genetic information may be released to researchers "only in coded form, as a set of data and on the condition that tissue samples or data concerning at least five gene donors are issued at a time."
Supporters of the project expect that the Estonian Gene Bank will become a favorite source of information for researchers associated with biotechnology and pharmaceutical companies that are expected to pay handsomely for access to the decoded(and anonymous)information. Some firms are expected to set up shop in Estonia, presumably in or near the university city of Tartu where most Estonian geneticists live and work. The project is expected to "put Estonia on the map" and lead to an economic bonanza for a newly independent country with few natural resources.
Not everybody shares that view. Regardless of the favorable poll results, a number of objections have been published in Estonian-language newspapers. These range from the simplistic "If it’s such a great idea, how come the French and Germans aren’t doing it already?" to arguments that the startup money could be spent on better things. Some commentators are also concerned about privacy. Information in the data bank could be used for blackmail—and is there a data bank in the world that is truly secure from hackers? And what about leaks? Allegations of corruption are a fact of public life in post-Soviet independent states. Estonia’s scandals have been less lurid than those of other states, but there have been enough to engender considerable cynicism, not just about leaked data, but also about payoffs where lucrative contracts are involved.
Under Estonian law, donors may request to have their tissue samples destroyed______.
选项
A、at any time
B、if their secret code has been decoded
C、if their identity has been revealed illegally
D、with their physician’s approval
答案
C
解析
属事实细节题。题目中的关键词samples destroyed出现在第二段最后一句:如果他们的身份被非法公开,他们也可以让自己的样品资料毁灭。由此可知,选项C正确,原文中的unlawfully disclosed对应选项中的revealed illegally。其他选项都与原文内容不符。
转载请注明原文地址:https://kaotiyun.com/show/HE74777K
0
考研英语一
相关试题推荐
CharacteristicMedicalTreatmentItisstartlinghowcommonthesechronicdiseaseslikecancerarewhenonelooksatthenum
TheOceanPollutesAdecisionbytheLondon-basedInternationalMaritimeOrganization(IMO)establishesanemissionscontrol
TheOceanPollutesAdecisionbytheLondon-basedInternationalMaritimeOrganization(IMO)establishesanemissionscontrol
Untilrecently,mostpopulationgrowthhasoccurredinrelativelydenseurbanenvironments.In【C1】______words,evenifwewerew
Untilrecently,mostpopulationgrowthhasoccurredinrelativelydenseurbanenvironments.In【C1】______words,evenifwewerew
Untilrecently,mostpopulationgrowthhasoccurredinrelativelydenseurbanenvironments.In【C1】______words,evenifwewerew
Untilrecently,mostpopulationgrowthhasoccurredinrelativelydenseurbanenvironments.In【C1】______words,evenifwewerew
随机试题
2014年年末,某省公路里程172167千米,同比增长2.8%,其中,高速公路4237千米,同比增长3.3%。国家铁路正线延展里程和营业里程分别为15060千米和9351千米,分别同比增长-0.28%和0.23%。地方铁路正线延展里程和营业里程分别为180
不具备路由和跨网段操作功能的协议是()
额窦可显示于下列哪些体位片
过期流产的刮宫时机应在
下列行为违反了《建设工程勘察设计管理条例》的是()。
西南矿业公司产出的矿产原材料金属含量比较高,是富矿,在市场上的售价比其他矿高。目前冶炼产品的市场竞争激烈,从经济效益的角度来看,对自己的矿进行进一步冶炼再出售不合算,所以西部矿业决定停止加工冶炼业务,直接出售自己的矿,以获取更大的利润。这反映的风险管理工具
()是指采用一种预先设计的结构性表格,由考评者以文字的形式对员工的行为做出描述的考评方法。
教学与研究发现,学生解决抽象而不带具体情节的问题时比较困难,而解决具体而接近实际的问题时比较容易。()
根据下列材料回答问题。“十一五”期问,我国货物进出口总额累计116806亿美元。其中,出口总额63997亿美元.比“十五”期间增长1.7倍;进口总额52809亿美元,比“十五”期间增长1.4倍。“十一五”前两年,我国货物进出口总额保持23%以上的快速增
下列说法错误的是()。
最新回复
(
0
)