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  3. Ashley’s Message of Hope 1. The birth of any child raises many questions. Will she have my eyes, her dad’s smile? What will she

Ashley’s Message of Hope 1. The birth of any child raises many questions. Will she have my eyes, her dad’s smile? What will she

admin2009-06-15  46
问题                       Ashley’s Message of Hope
1. The birth of any child raises many questions. Will she have my eyes, her dad’s smile? What will she want to be when she grows up? But the biggest question for every parent is "will she be healthy?"
2. Our daughter, Ashley Elizabeth Naylor, was born on August 12, 1988. We had a lot of mixed emotions the day of her birth, but mainly we felt fear and despair. The doctors suspected complications (并发病), which led to a cesarean section (剖腹产手术), but the exact problem was not known. Two weeks after her birth, chromosome (染色体) analysis revealed cat cry syndrome. The doctors were uncertain about how the disease would develop. This was a rare disorder, we were told, and little could be offered to help our daughter. The doctors used the words "profoundly slow," which cut like a knife through our hearts and our hopes. It wasn’t until a few years later that we realized how little the medical community actually knew about cat cry syndrome and especially about our little girl!
3. Ashley defied all the standard medical labels, as well as her doctor’s expectations. Her spirit and determination enabled her to walk with the aid of a walker (学步车) and express herself using sign language and a communication device. With early intervention and education at United Services for the Handicapped, Ashley found the resources and additional encouragement she needed to succeed. In return, Ashley freely offered one of her best loved and sought after gifts--her embraces. Her bright eyes and glowing smile captured the hearts of everyone she met.
4. In May of 1992, Ashley’s small body could no longer support the spirit that inspired so many. She passed away after a long battle with pneumonia (肺炎). Her physical presence is gone, but her message remains: hope.
5. If you are a parent faced with similar profound questions after the birth of your child, do not assume one doctor has all the answers. Search for doctors who respect your child enough to talk to her, not just about her. Above all, find an agency or a school that can help you give your child a chance to succeed. Early education for your child and support for yourself are crucial.
6. If you are a student in a health field, become as ’knowledgeable as possible and stay current with the latest research, but most importantly, be sensitive to those who seek your help. Each word you speak is taken to heart, but hope can make all the difference in a family’s future.
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